DAY 21 and 22 of 365

A Word About 0utpatient Procedures and RAD and Crohns

Having an active dx of RAD and Crohns. A seemingly simple outpatient under sedation becomes more complicated. First due to the numerous medications that you take and the medical history you have to provide. For this particular procedure, I had to explain to the same RN why I take injections for "just arthritis" (her words). Which caused me to have to educate her earlier this week via phone and today again in pre op about rheumatoid arthritis being an autoimmune disease. I truly think a change in terminology would help eliminate having to constantly educate the difference between "JUST ARTHRITIS" and AUTOIMMUNE.

The next hurdle is that I check and double check that everyone who is in on the case to be aware of my medications. Most important to me today was the anesthesiologist. I really wanted to alert him to the long term use of steroids and the potential damage it has done to my adrenal glands. The anesthesiologist was a student, no problem, I am in the education business. But he did call over his supervising Dr and they discussed stress dosing and amounts. I was very glad they had this conversation in front of me, as I knew they were aware of the risks of long term steroid use (which is unfortunately common with autoimmune diseases), and the student easily picked up on it. (Kudos to him-- he will make a great Anesthesiologist!)

My medical history is equally important including previous surgeries as well. What medications I tolerated, for pain, nausea, etc. I also explained some issues with certain antibiotics and Rheumatoid. After awhile, this particular medical team, headed by a GYN who has known me since I was a "little girl" he says-- (I was 23!) He is the one who is OLD! hahaha Anyway, both Tom and I have a good report with him, and he always makes me feel comfortable and never hesitates to ask a question or offended if I choose to disagree with him, and ask for further explanation. probably the only reason I chose to do this procedure locally.

The last and most important part of any outpatient procedure is that you have a caregiver ready to talk to the doc. I texted the questions to Tom's phone, so he knew exactly what questions I wanted answered. The doctor was thorough in his explanation and we even have pics of the procedure. I will ask for surgical notes/report as well. (This is an ongoing process of managing and advocating for my own health care).

The rest of the procedure went well and we are just awaiting biopsy results. (Thursday or Friday) there was a small area of concern, but the doctor was re assuring. In the meantime, I am resting at home quietly with an excellent caregiver by my side.

 Bear one another's burdens, and thus fulfill the law of Christ. Galatians 6:2 
Blessings~ Kim
(Sorry to combine two days in to one... but, the nature of autoimmune.)